For those of you who haven’t read my previous blog intelligencer, I am currently in my encourage year of overall treatment (I was in successi~ abx for a little over a year, took six months over as symptoms had subsided, and in that case began antibiotic treatment again in January hind symptoms had come back and I assayed positive for Bartonella).
At first, my LLMD simple fellow me on Doxy, Rifampin, Azythromycin, and Mepron. After he took some follow-up bloodwork several weeks later and cast that my liver enzymes were elevated, he switched me to Clindamycin, Tindazole, and Malarone. He furthermore added Cymbalta (40 mg/day) to my regulation of diet as the panic attacks had be converted into frequent and I was tired of stain-treating them with Xanax. Although I had (and calm have tremendous reservations) about taking somebody preventative like Cymbalta, I will allege it has completely eliminated my terror attacks.
Around March of this year, I began to be obliged acute upper-abdominal pain. Knowing that my liver enzymes were high, I feared gall bladder complications from everything the meds, and so immediately stopped excitement the abx and saw my PCP. She scheduled ventral and pelvic utlrasounds and sent me in quest of bloodwork. By this time, because the liver has with equal rea~n many self-healing properties, my enzymes had returned to ordinary (confirming the abx treatment as the aim) and, thankfully, the ultrasounds showed nay abnormalities. Fearing the Bartonella running impetuous in my brain, I began the abx formerly again for a few weeks. The shrill pain became worse and spread over my abdomen, so I (again) stopped attractive them, and have not been attached them since.
I HAVE been catching – and this is super important to short letter for anyone looking for immune hold up – 10,000 ius of Vitamin D a appointed time, as well as Phytosterol, Skullcap, and S.A.T. I papal court Dr. Petrowski in Timonium, MD. She is a biotixin specialist who does lots of testing and is incredibly ready to help in dealing with the natural/liberty side of things. I initially started vision her after I had been exposed to mourning toxic mold so I could gain some help processing all the neurotoxins, unless she frequently treats patients with vitiating diseases so that she can uphold our bodies as we endure the toxins released for the period of the die-off process. After extended testing, she showed me the bloodwork that permit her know that my hypothalamus is pleasing much non-functioning after all of the toxins in my material part have had a chance to move on wild. For the last several weeks, other than the abdominal pain, I had been feeling like SUPERWOMAN. My security was back, I had mental clarity, I was moving out again, and felt like 100% was honorable around the corner if I could have myself off of Cymbalta. But continue Thursday, things took a sour deflection.
I woke up sick to my stomach and had diarrhea for the next five days. I was in South Carolina towards a friend’s wedding and in such a manner decided just to tough it fully with Immodium and stay hydrated until I got home. This Sunday I went to Patient First whither they clinically diagnosed me with C-Diff and sent a discharge sample out for confirmation (it was confirmed a man and wife days later). I was taking Flagyl toward the bacteria and Bentyl (an anti-violent and short-lived, I think?) for the pain, on the contrary four days later, my arm broke aloud in hives, so I stopped anger both. The next day, before I’d had a hazard to call the doctor to obstacle them know, my throat closed up as far as concerns a moment after eating lunch. It was very brief; I couldn’t breathe in or liking for a few seconds, and hereafter it opened again and I could manifest just fine. And then my faux and tongue became extraordinarily dry and irritated.
Let me in the ~ place say that I don’t be seized of any known food allergies (only lactose narrowness and a mild gluten intolerance). Also, I receive a hiatal hernia for which I take Prilosec OTC 2x a light of ~ (diagnosed years before the Lyme), and I make no doubt of I’ve been having esophageal spasms in quest of the last six months. Feels like your affections is fluttering, or a fish is stuck in your case. But because I had had a reaction to the abx the day prior to, I became concerned about anaphylaxis, and asked our seminary nurse for some advice (I advise at a small school). The rear informed me that people can acquire latent reactions (although I found confused later that it’s extremely improbable to have an anaphylactic reaction that abundant later) and she wanted to administer epinephrine. I was like… um… not at all thanks, I’ll just go to the E.R. They didn’t be sensible of me to be in any without other agency danger, but gave me steroids and Benadryl lawful in case, and kept me to monitor me and administer fluids. A chest X-ray revealed nothing abnormal (the sort of were they looking for, anyway?). They moreover gave me an Epi-pen script, that I am very grateful for, since later that evening after eating dinner, I had a extremely similar reaction. I didn’t obtain to use it, but I’m inclined to suspect of having developed a food allergy, and bequeath now be eating saltines until I can see an allergist. Did anyone otherwise read those studies of people pretty allergic to red meat after inner reality infected with Lyme?
I think the steroids may possess been a huge setback for the Bartonella considered in the state of well, because for hours last adversity and into today, I was experiencing extremity numbness in my face and eyes, hands, legs, and feet. It was horrid. I’ve had it before no more than it was never that bad. I was terrified of dormant last night and kept thinking I was going to feast up paralyzed or blind. It’s thus hard not to let fear take manage after you’ve essentially had your life taken let us go., and I’m so grateful that I’ve gotten it back (toward the most part) and am absolutely scared to have it taken another time.
Today I’m meeting with me LLMD to consider a picc line. For those of you who harbor’t had to go to of the like kind extremes, a picc line delivers the abx short into your bloodstream and bypasses the narrow pass. While it’s risky in stipulations of what it can do to your organs and risky for of potential blood clots, I slip on’t see another way to use the Bartonella while I have C-diff. The diarrhea is in some degree much gone (although I do stop have intermittent abdominal pain, and I did be in actual possession of what appeared to be blood in my discharge when they took the sample), unless I know C-diff can be deadly and can last for months and even years, so I’m thinking it’s time in quest of a line.
Did everyone see that Hopkins is first a research center for Lyme? On the undivided hand I’m concerned, given that some of these doctors are the ones who staunchly put faith in Lyme cannot be a long-mete condition. On the other hand, a myriad times hooray for research.
As through all ages., please feel free to comment admitting that you’re new to Lyme and you’d like to greet with me personally about any questions or fears your efficiency have. I know sometimes it’s prosperity just to be able to theme to someone with a shared actual presentation. Off to see my LLMD!
Any constipation or digestive complaints should clear not above 5 to seven days and really should not last for far besides than two weeks.