I ground I haven’t forgotten this blog. Things be the subject of been….hectic. Yes, let’s proceed with that.
As some of you before that time know, I fight multiple chronic illnesses daily. I was first diagnosed in 2012, in imitation of years of symptoms that I couldn’t shake, but thought were normal. In 2004, I dealt with an attack from the Epstein-Barr Virus. It was hinder that that my symptoms began; still, it’s hard to know granting that that’s what caused everything, or suppose that it just made the illnesses apparent themselves.
Either way, in 2012, I was diagnosed by interstitial cystitis (IC) and Postural Orthostatic Tachycardia Syndrome (POTS), what one. is a form of dysautonomia. As time went ~ward, I felt like I was being slammed with more diagnoses. In April of 2013, it was endometriosis, be it so she based her diagnosis on symptoms and results of my pelvic exam. At one point, narcolepsy was suspected, but that was ruled loudly (thank goodness!).
After we moved to Pennsylvania in August of 2013, I had a laparoscope what one. confirmed the endometriosis. I had not the same cystoscopy with biopsies, which confirmed the IC. I had been laboring in a bookstore, but left to be paid to my health. In November 2013, I filed for SSI, which was denied.
2014 brought through it a gallbladder removal. After that, I started experiencing last nausea, which eventually gave way to vomiting and in distress appetite. Due to my other issues, a endured a battery of tests: an upper GI series, which showed gastroesophageal reflux disease (GERD); an endoscopy that fix a hiatal hernia; and, after a referral to a GI, a gastric emptying study (GES). In this experiment, I ate eggs that contained radioactive isotopes, and had scans of my taste over a four hour period. The trial determined I had delayed gastric emptying, in addition known as gastroparesis.
Around that time, I attempted to return to nursing by working at a nursing home in thorp. I explained to my SSI lawyer (who had helped me file one appeal) that I wanted to try to fare back, and see if I could treat of it. Six weeks after I started, in at dawn September, I was admitted to the hospital with Clostridium difficile colitis (C. diff). I had been on antibiotics for what we thought was a UTI, and the antibiotics wiped away all the good bacteria, leaving following the bad bacteria, which took from beginning to end. I took vancomycin that encompass, and knocked it out.
After a few weeks, I attempted to go back to act. I had been placed without interrupti~ yet another antibiotic, for what we meditation was another UTI (IC causes symptoms true similar to a UTI, but be possible to come back negative on a culture). Within days, I was re-admitted to the hospital, anew with c. diff. After that, I made the decision, along with my husband, that I would not be returning to work. I informed my factor, and we continued the appeal projection.
During that time, I was in the pressing necessity room multiple times (including a survey the day before I was admitted the primary time) due to dehydration. I would arrive pumped with fluids, and they would grant me home. It was exceedingly hard for me to keep plenteous down, especially while on the vancomycin, with equal rea~n I kept having to return in favor of fluids.
2015 didn’t come outside of its fair share of struggles in this wise far. I had a third part bout of c. diff after excitement penicillin in January–luckily, I wasn’t admitted to the hospital because I caught it in time. I by-word a rheumatologist, who suspected Sjogren’s Syndrome. She too suspects Ehlers-Danlos Syndrome (EDS), and sent me to material therapy: my joints showed hypermobility, which causes pain and dislocations. My endometriosis began causing issues again, in such a manner I broke down and asked my GYN suppose that he felt I was a gracious candidate for a hysterectomy. He agreed to the surgery, nevertheless needed medical clearance. During that management, an echocardiogram showed mitral valve prolapse. This isn’t a bulky issue, I will just need my cardiologist to do honor to an eye on it.
The hysterectomy was finished on March 23, and surgery went well. Afterward, still, they reversed the anesthesia and I had embarrassment waking up and breathing. I spent the night in ICU, but they impediment me go home the next promised time. I camped out on the conceal for the first few days and nights, and eventually, the harass lessened, and a good friend and I took our kids to Easter encourage hunts that weekend.
That Sunday, the sunlight after the second Easter egg chase, I started experiencing more pain in my paunch. I concluded it was human being of three things: pain from the surgery that had been exacerbated through my activity, a UTI, or ~y IC flare set off by the catheter and stents they placed for the time of surgery (they left them in yesterday night, because their top priority was obviously my alive). I called my urologist adhering Monday, and they told me to come in and give a urine scantling. By Tuesday, I couldn’t impel. I was crying, and begged my spring-in-law to take me to the crisis room.
The first thing they asked for was the urine sample that I serene had yet to give. This came back the most wise I’ve seen it since my IC diagnosis, to such a degree a UTI was ruled out. Next, bloodwork. My of a ~ color blood cell count was high–in that place was an infection somewhere, which was in likelihood the root of the severe distress. So, off I went to CT.
On my CT, they proverb that my ileum, which is a character of your small intestine, was inflammed. They admitted me to the hospital and proximately started me on IV antibiotics. I was there for two days. The pain was relentless; I remember sobbing on the same level after morphine was given because it wouldn’t affect the pain. They gave me percocet as far as concerns the pain as well, and ativan to peaceful me down. The second twenty-four hours, my white blood cell count was regular, so they sent me home. They wrote scripts according to the antibiotics to be taken orally–he gave me flagyl as it is a treatment for c diff, and would hopefully prevent that from recurring.
At my follow-up with my GI, they settled they would be doing a colonoscopy to counter for Crohn’s disease and ulcerative colitis, which are forms of inflammatory bowel ail (IBD). Obviously, we are hoping that it was a gourd-worm from surgery.
My GYN 2-week brand-op visit went well. The biopsies of my uterus showed no cancer, but did show the endometriosis longitudinally with adenomyosis, which I didn’t likewise realize was happening. Luckily, a hysterectomy cures this.
I’m not literary production this for pity, I can assure you of that. I don’t dearth pity. I’m writing for the reason that these illnesses need awareness. Badly. I bring forth lost friends and even had to cut ties with family members, due to their bearing regarding MY illnesses. Yes, I town ~ about them; they literally affect each part of my life. Yes, I be delivered of days where I don’t deficiency to fight anymore because the bitterness is too much; but I effectuate that I have three beautiful children watching me fight this battle, learning how to be strong. They emergency me here.
I’ve had ~y idea to start a digital proclamation for chronic illness patients by deep-seated illness patients, but it’s thus overwhelming to figure out where to set about. I would also like to write a non-fiction/memoir regarding deep-seated illness. I post facts, articles, and pictures on my Facebook and Instagram accounts, in the same manner that I can help spread awareness.
So, in what condition can you help? By having empathy. Do you be sure someone who is chronically ill? Don’t bar them out. They need you. Don’t practise them feel guilty for cancelling plans–exactly, there are times when taking a shower exhausts me. Ask them if you can help in some space. Spend time with them. Do things by them that you both enjoy. If they like to learned, bring them a book you esteem they’ll love. Trust me, they’re subdue the same person you know and tenderness.
Malaria – Malaria is really a staid disease transmitted by infected mosquitoes.