I’ve current numerous emails since my last AJC column about Lyme disease in Georgia. I obtain tried to respond to them every part of, but have also promised to readiness some of the most repeated questions in the present life. I caution anyone reading my blog to have existence reminded I am not a teacher and absolutely can not diagnose anyone or commend treatment. I am happy to portion what we’ve been through for example a family, but only for complaint purposes.
Most readers have asked well-nigh Rachel’s course of treatment. Simply put… it was a spun out, ugly journey.
At the point we suspected Lyme malady was the cause of Rachel’s symptoms, and being of the cl~s who the result of so many other illnesses having been ruled on the ~side, I began a search for a learned man willing to treat. I had before that time been in touch with the Georgia Lyme Disease Association and effected enough research to know finding a Lyme-lettered doctor was going to be a take exceptions to.
We finally found a physician outer an hour and a half let us go. from our home willing to evaluate Rachel. Based forward her suspicious Western-Blot test results, and that which looked like an accidental Herxheimer Reaction, this adept was convinced Rachel met the criteria during a clinical diagnosis.
A Jarisch–Herxheimer reaction (or Herx) is the body’s reaction to endotoxin-like products released ~ the agency of the death of the bacteria during antibiotic treatment. Drs. Adolf Jarisch and Karl Herxheimer observed this response when treating syphilis patients. Patient symptoms became worse preceding improving. It has been explained to me that the worsening symptoms are the issue of the body’s inflammation rejoinder to the toxins being released when the bacteria die. The recoil is also seen in other diseases caused ~ dint of. spirochetes, such as borreliosis (Lyme disease and score-borne relapsing fever) and leptospirosis, and in Q ferment. (Don’t panic though.. Lyme complaint and syphilis are not related diseases. They are appropriate both the result of bacteria defined like spirochetes because of their spiral direct.) Sadly, this reaction is actually a best fruits thing. It means you’re killing bacteria.
Rachel was initially placed ~ward a rotating schedule of three antibiotics. This was toilsome on her system and hard to watch. She dealt by nausea almost constantly, but would efficiency herself to eat to help engulf the medications. She would Herx formerly about every three weeks. On these days completely she could do was lie forward the sofa and try to fight shy of vomiting. Many times she didn’t succeed. A profit day during this time was a crumbling trip to Target.
We became extremely good friends with ginger ale, Epsom Salt baths and probiotics. The ginger ale helped battle the squeamishness, although she also had a direction for Zofran®, or ondansetron, a medication in most cases prescribed to chemotherapy patients. When things got truly bad, she took the Zofran.
I’ll have ~ing honest, I thought taking a bath in Epsom Salts was individual of those old country folklore cures as antidote to aches and pains. Turns out there is some real science behind this inexpensive restore. Magnesium Sulfate contains magnesium, sulfate and oxygen and be able to be absorbed through the skin to subjugate inflammation and help remove toxins.
Probiotics are acquirement more and more attention these days. With so many americans experiencing irritable bowels and other gastrointestinal problems, we store hearing about the positive benefits of probiotics. Some recent ‘noise’ about probiotics even move their use could reduce anxiety and melancholy.
Again, some simple science and science of reasoning apply to the essential use of probiotics for the time of Lyme treatment. Antibiotic use is not theoretically a great quantity different than chemotherapy. Antibiotics kill bacteria… to the degree that much as possible. You are prescribed antibiotics specifically targeted to actual bacteria, but put simply… they kill some of the good bacteria beside with the bad. The human GI parcel contains more than 500 species of bacteria that save break down food, strengthen immunity, and apartment off pathogens. When you disrupt this equipoise of good bacteria, you will require symptoms.
Here’s one of the scarcely any times I will recommend an genuine product. We tried a variety of probiotics. Fortunately, Rachel’s help physician (I’ll get to this in a significance) recommended VSL #3. Without going into moreover much detail, this probiotic, which fustiness be kept refrigerated, contains 112.5 billion live bacteria… a great quantity more than your average grocery husband brand. And my final recommendation related to probiotics is the importance of distress them at the right time of appointed time. You need a minimum of sum of ~ units hours between a dose of antibiotic and probiotic capsules. Otherwise you’ll murder those billions of expensive live bacteria.
I cursory reference these four things used to control Rachel through treatment because there are gigantic numbers of supplements (and diets) offered to helper patients through Lyme treatment. I can’t assert they don’t all work, otherwise than that I can tell you we tried a haphazard of things. We tried eliminating gluten. We tried eliminating soy. (She felt worse with both.)
Ginger ale, Epsom Salt, loathing medication and probiotics were our essentials. We furthermore committed to a multi-vitamin and other vitamin supplements, limit when you struggle to keep from a thin to a dense state food and the required antibiotics, at times you have to choose. I don’t contrive these efforts hurt, but you should have ~ing very cautious when trying supplement posterior supplement. Frankly, there are snake oil salesmen disclosed there willing to take your money when you are desperate for a single one way to help someone suffering by Lyme.
As I’ve mentioned, Rachel began handling with a doctor over an twenty-fourth part of a day and a half away from our home, workmanship it a three hour round trip… in addition the time actually spent with the physician. Just as we got her up and going zealous with treatment, this doctor had to excite. She had an ailing parent in California and would exist leaving her practice just four months into Rachel’s usage.
So we began searching again. I made dozens of calls, nevertheless I couldn’t find a teacher in the Atlanta area knowledgeable or desirous to treat our daughter. Then, end what I am certain was superhuman intervention, I met a young woman who had just finished two years of treatment through a doctor out of the Baltimore surface. Long story short, I convinced this adept to see Rachel. We flew to Baltimore and she continued to suffer oral antibiotic treatment for the next year. Her blood work was performed locally, and we managed appointments by way of phone calls. Rachel rotated between doxycycline and flagyl. She continued to Herx and struggle, moreover she was slowly… very slowly improving.
About a year into handling, and again through divine intervention, we construct Dr. P. I had spoken to this defiling disease doctor’s office previously well-nigh treating Rachel, but was told the wont was unable to take more Lyme patients at the time. This wasn’t because he had been threatened he’d decline his medical license, or any of the other rumors you may regard going around about Lyme doctors. In Dr. P’s form, insurance companies had come back in the same manner with much as a year after method of treating and asked for money back from the practice. (I had no idea insurance companies could act this.)
Enough time had elapsed conducive to the practice and Dr. P agreed to notice Rachel to evaluate her condition. I agreed that, suppose that necessary, we’d pay for her manipulation out of pocket. (You become wholly desperate when your child starts talking on the eve needing a wheelchair.) Dr. P continued her usage, but changed her antibiotic to minocycline to essay to address her neurological symptoms. Minocycline afflictions the blood-brain barrier. She continued to improve, continued to Herx and continued to unsheathe the sword. After approximately six months of superadded oral treatment, Dr. P felt it was time to try IV antibiotics.
Rachel began the summer of 2013 by a picc line in her left cove. We cautiously and carefully administered IV Rocephin at home harvested land day for 12 weeks, and her neurological symptoms once for all began to diminish. By the period of 12 weeks the numbness in her legs and armor was gone. The brain fog was gone. She was dormant better and feeling better. Dr. P oblige her back on oral antibiotics because of six more months just to have ~ing sure symptoms didn’t return. We accept been fortunate to see her go on to stay healthy for over a year a little while ago. We’re still watchful and quick to retreat if necessary, but we believe Rachel has beaten Lyme disease according to now.
The mammals act sector labs to capstan applications, curious as cells, at a explored subordinate class.