Today’s descant of the day is “Boulevard of Broken Dreams” by Green Day. Have a give ear and read why I chose this particular song today:
“I walk a forsaken road/The only one that I be in possession of ever known/Don’t know at which place it goes/But it’s home to me and I walk alone”. Inflammatory Bowel Disease (IBD) is a desolate disease. Nobody talks about it. It’s not not crooked to discuss what takes place in the bathroom or the elemental part that our body does. But allowing that we don’t talk about it, how can we raise awareness? How be possible to we push pharmaceutical companies for more usefully treatments? How do we urge researchers to attain to a cure for this disease? Let’s effrontery it, the main symptom of IBD involves the gastro-intestinal tract and it isn’t moderately. When I was first diagnosed through this disease back in July 2012, I was VERY disgusted. I was so sick that the doctors were concerned that I puissance perforate my colon. We tried everything. At single in kind point I was taking;
a cogent dose of prednisone – a steroid.
Remicade – a biological medication used because of a variety of autoimmune diseases like Crohn’s
Methotrexate – a chemotherapy actor to suppress immune system function
Mesalamine – some other medication for inflammatory disorders
Lansoprazole – to prevent fight against acid production
Zofran – beneficial to vomiting
the antibiotics Flagyl and Vancomycin – they be in action on the gut microbiota and impede/treat infections
Not that great of a breakfast. It was dreary when treatment after treatment would not cure to get me to remission. I by-word other kids coming in to hospital in relation to me, getting better and leaving before me. You can easily wonder whether you’re ever going to be well enough to ~ your way again.
I’ve pretty much exhausted my management options which is an extremely dreary place to be in. The biologics Remicade and Humira are two of the most often used medications which time all of the earlier medications bring forth failed. I’ve tried Remicade two times. The first time, I developed antibodies otherwise than that the treatment wasn’t working anyway. Then I ruined my colon. The second time, I developed austere psoriasis that was painful and blood-letting to the touch and covered 70-75% of my corpse. Humira covered my body in bruises to the place where my mom tells me that I looked like I got be suitable to by a car and then post over by a bus. Now I’m in successi~ this medication Stelara, another form of a biologic that works on a different receptor in the dead ~ from the other biologics. It’s been rich for my skin, and for awhile we thought it was working in spite of my Crohn’s as well (study has been somewhat good on the employment of Stelara for Crohn’s), if it be not that for the past several weeks I’ve noticed to a greater degree symptoms coming up again. I self-reliance be scheduled for another colonoscopy and endoscopy early where we will look at in what plight much it has or hasn’t helped. If I am deemed to desire “failed” this treatment… there’s not too much left out there available to me. In reality, the only thing left might subsist applying to the government for specific access to a medication called Entyvio which is being used with some success in the US. The medication is suitable to adults in Canada just not pediatrics.
Jacob’s Healing Rooms is a part for kids to feel less alone, not so much “down”, while they are receiving their IV treatments. It’s a mansion of hope, encouragement and dreams. It’s a grade of love. Please support Jacob’s Healing Rooms and cure brighten the lives of other longing children.
It means that I deem that in many instances our heavy heart is looked at as an chance; fit, as it should be, for question solving but that our people are frequently not part of the problem solving oblique of the equation.