Since our in conclusion visit, Pumpkin had scopes and pill cam in the origin, which were normal. They did not digress her on any new meds, boundary called it IBS, which in my favorable judgment means “I Be Stupid” and diagnosis the medical practitioner, not the patient. It property they really don’t know for what cause they are still suffering. They gave her Anaspaz and later not the same antispasmodic that starts with a d, that isn’t future to my brain just now. Both were not actually helpful, and both lowered her grasp threshold to the point of breakthrough seizures. Recently, she had a Lactulose breath test and was diagnosed with SIBO (microscopic bowel bacterial overgrowth) and she is a little while ago on Flagyl (metronidazole) for 10 days. Hopefully that direct cure her, or at least fix her GI wise for a lengthy stent. A few weeks past, she was hurting so bad that we had to take her to the ER. She got victory during the night, but had some other seizure while there, and had to stay in opposition to a 24 hour video EEG, which did not catch any more grasping activity. More on this later.
Pumpkin tried to be this summer, but her health problems and resort to ~ly abdominal pain proved to be also much. She frequently had to hazard down, and one of her legs swelled up abnormally.. She had to be obliged the following tests: MRI of her lumbar thorn to rule out spinal shearing. It was usual. Two spinal xrays, one uttered scoliosis, but second one normal. She dictum a neurosurgeon and an orthopedist, that ruled out those conditions. She had a leg ultrasound, ECG and proverb a cardiologist for her swollen leg. It ended up that she has aboriginal lymphodema in her leg and has to wear compression stockings on her left leg generation and night for the rest of her life. She by-word a lymphedema clinic for this, and had a scarcely any visits to Peoria to get equal and fit for the stockings.
In August Pumpkin went to Wisconsin toward Camp Oasis. She loved it. However, she had lately seen her GI, who upped her good for cramp to four times a day. She ended up having seizures sum of ~ units nights in a row, and they asked me to arrive get her. This made me incredibly vexatious for her, because she couldn’t just get a break when she was surrounded ~ means of doctors and nurses at a camp ~ the sake of kids with Crohn’s. Hindsight, I consider the increased dose of her carminative triggered the seizures. She continues to esteem seizures about once a week, except I can usually attribute it to some trigger: sleep deprivation, taking Flagyl, catching an antispasmodic, etc. She sees a pediatric neurologist at the cessation of the month to discuss her seizures.
This summer she had problems through her asthma. She was adhering prednisone for 12 days to control diagnose it. She seems to be doing well on Symbicort now and not often needs her albuterol inhaler any further. She was finishing up her prednisone utmost month when she went to the hospital. The prednisone had made her constipated too, which is really abnormal as far as concerns her. She also was pricked 69 state of things for allergy testing and saw the allergy and asthma doc 3 epochs over the summer.
Finally, I take it, she also saw a counselor manifold times in August and September. I slip on’t think we ever really akin very well with her, and through all her other stuff going in c~tinuance, we just stopped going.
I conjecture that
You are strong enough to rally, and we are here to assistant.