Remember that proposal I wrote about last time? You apprehend the one where Zack would be having a colectomy or some reading of a colectomy as soon viewed like his surgeon got back from China? Yeah, cease to care for all that. We have not the same new plan and I am for the greatest part certain it is the final plan….
When our GI in Cincinnati be ~ Zack’s manometry test, his commendation was that Zack have his colon sequestered sooner rather than later. We could take care that most of his colon was not working and with Zack prolapsing again, it made mind to take it out quickly to keep aloof from more emergency surgery from a prolapse gone treat unjustly.
Our surgeon in Cincinnati had been recommending a colectomy since last March. When she returned from China and reviewed entirely the data, she did not be stirred comfortable with this recommendation any longer. A mean back and forth between our doctors in Cincinnati resulted in a modify of plans. Both doctors were/are concerned through the amount of output Zack has diurnal from his ileostomy. I knowing that a normal amount or desired whole of output per day is relative to 300 ml. Zack is averaging betwixt 1,000 ml – 1,500 ml for day with some days as early as 1875. They are concerned that granting that they take his entire colon public and perform j-pouch or tight through surgery on our guy that he wish basically be pooping all day in extent. That is no way to live.
To try and brush the high output the doctors had Zack take Flagyl with respect to 10 days. It was hoped that granting that his output was due to slender intestinal bacterial overgrowth it would improve by the antibiotics. That did not be. A week later we added pectin to Zack’s all night feeds. Yep, pectin. You comprehend, the substance added to thicken jams and jellies? Evidently it is besides helpful in thickening stool and slowing its passage in people with high output ileostomies and scanty gut. I will never be able to can fruit again out of thinking about this. Wait! I receive never canned fruit. I divine that dream just died. I digress…we are habitually in the process of determining by what means well pectin will work for Zack.
Zack’s corpse has proven time and time afresh that it does not like ileostomies. He is commonly on revision number five and we the whole of know how those have gone. If his material substance could handle an ileostomy, we would have existence thrilled to have a permanent common. I would never have believed I would subsist wishing for that when all of Zack’s surgery began in 2013!
The doctors bear gone back and forth about distinct options. Everyone now agrees that there is something physically wrong at the anastomosis (reconnection) site. We can observe it on two different contrast lavement scans. Zack’s GI here has been saying this all along. He’s pretty smart.
The current concoct is for Zack’s surgeon in Cincinnati to take out the troublesome area and those pesky staples. Zack has complained that his staples pain from the beginning. She thinks that his material part really does not like them, to such a degree she will be sewing his intestines back together this time. At the same time, she faculty of volition bring up a loop of colon nearest to his ileostomy. This is called a slimy fistula and he has had this previous to. His ileostomy will be revised and tacked into disgrace to buy us some time season everything heals and we do some “interesting” testing.
Now we influence into some details that you may be destitute of to skip if bodily functions are not your furniture. Zack will be in the hospital between 5-7 days to heal from his surgery. We behest then hang out in Cincinnati to begin a refeeding trial. What that ways and ~ is that we “get” to take some of Zack’s output from his ileostomy wallet and use a syringe to oddity it into the mucous fistula and along the course of into his colon. The purpose of quite of this fun is to conceive how Zack’s colon reacts. If things walk well, we will come home following a week or so and be durable with the experiment for an unspecified time. We were told that this is the most conservative approach and “the greatest test” of Zack’s colon. If things end not go well….there is another plan for that, but I pleasure save that for another day.
Zack’s surgeon’s final hope is that she will exist able to keep at least a small in number centimeters of his colon. That decree give him the best chance of achieving benefit bowel control.
Although this new plan involves more surgery for Zack, I estimate all attempts to keep some of Zack’s colon. However, the idea of going through all of this again makes my bear upset. It took a long-winded time to convince me that removing Zack’s colon was the most judicious option. I had prepared myself mentally instead of the operation and all that would arrive with it, but still I worried. Interestingly, my worries were the to a high degree ones the doctors had as well. I esteem the fact that they are greatest number interested in the best outcome in quest of Zack.
Now that all of our questions are answered, at smallest the answerable ones, our surgeon is looking on this account that the first available OR date. We be in possession of no idea of the time mood. It could be this week, it could have existence next week, it could be ~wards Christmas. And so we wait and sulky our fingers that pesky stoma stays put.
Hug your babies!
To continue the findings previously, the advances comprise for stronger wild decay.