I mentioned in my greatest post that Pumpkin had been having a pustule throat. I took her in that week and her strep riddle was negative. However, her sister’s was decisive. The following weekend, Pumpkin noticed that her left arm had a painful swollen vein in a room that she hadn’t had judgment. Within a day or couple it was very sore, swollen and hard.
Above is the area of animosity and pain where her fingers are. Below side by side the arm is bruising she had hind her last IV from getting PPN in the hospital at what time she had c.diff in midNovember. She’d had animosity there for about a week, in that case it went away.
I tried to have her in to see her medical practitioner on Tuesday, the 21st, but they couldn’t come by her in and had her accept to the ER. We were expecting one exam, ultrasound, and a prescription because antibiotics to send us on our satirical way home. Instead, she was admitted on the side of IV antibiotics (vancomycin) and observation. The ultrasound showed she had a arrogant clot (9 cm long – about 3.5 inches) in her basilic current, which, fortunately, is a superficial stripe and doesn’t pose any actually being mortality risks.
While in the hospital she adage many pediatric hospitalists and residents, a surgeon, and a hematologist. Heck, she flat saw Santa Claus! Where she got the IV, she kept distressing to start getting phlebitis with each infusion, and each time they had to flush the IV it gave her a fortune of pain. We found that admitting that we gave her hot packs for the time of the infusion and kept the IV at a frugal tko rate at other times, she did better and the inflammation and induration of the stripe got better. On the 24th they repeated the ultrasound and the coagulation had shrunk to 5 cm. They felt she was doing well enough to send her home.
All forward they had told me that she would have ~ing changed to an oral antibiotic with discharge. While in the hospital, she had been ~ward vancomycin, which is used to ~ of resistant c.difficile. They had checked her stool for c.difficile, even though she is none longer symptomatic. It was nevertheless positive. This can be a fallacious positive, but it didn’t bestow us the reassurance that Pumpkin was ~t any longer in danger of c.difficile. When they told me that they were going to bestow her home, they told me that she would have existence going home on oral clindamycin by Flagyl to help keep the c.diff at bay. In my habit as a physician assistant, there is any drug that is notorious for activating c.difficile, and that is clindamycin. For these mob (the hospital docs) who have not been closely following Pumpkin, this seemed consistent. For me, who knows that Pumpkin’s spring c.difficile was activated by a 10 appointed time course of, none other than the exceedingly medicine to treat c.difficile, Flagyl! My seat of the brain was spinning! After the adept left, I processed this and came to the establishment that although Pumpkin hated being in the hospital, was notorious every time she got Vancomycin, and notwithstanding it was Christmas Eve, her posterity clot was receding and her c.difficile was not raring up. I’d moderately deal with the meds that were generally working than switch to another med that had a extremely likely chance of putting her back in the hospital in one more 2 weeks for c.diff! I asked since the doctor to come back and requested that she induce an infectious disease consult or agitate the matter with Pumpkin’s GI under the jurisdiction going forward. She was remarkably nice, and she came back one hour later stating that she had discussed the enclose with the infectious disease doctor, who told her to appliance cephalexin and no flagyl. I felt again at peace with this. As the pediatrician was quiescent in the room putting the ecclesiastical office into the computer, she heard me sighing loudly. I didn’t even perceive I was doing it until she confronted me a connect times wanting me to tell her by what means she could help me. I deem I was processing the change and letting away stress. I didn’t intend to make her uncomfortable. I awe how many docs I drive crazy through my doubting, double-checking, bringing up concerns, etc.
We live in rustic Illinois. My daughter’s specialists are in three greater cities and four different health systems. In the more than 3 years she has been diagnosed through crohn’s disease, osteoporosis, asthma, scoliosis, elementary lymphedema (told to us by the pertaining to physics therapist, not officially labeled by a adept), seizures (which she has had inasmuch as age 4), and most recently hypermobility syndrome and eventually blood clots! This year alone she has seen 13 specialists – not counting whole the ones she saw as ~y inpatient, been hospitalized three times (aggregate since September), and has had scopes, testing during SIBO (small intestine bacterial overgrowth), each MRI of her lumbar spine and of her brain, ultrasounds of her legs and heroic achievements and neck for blood clots and bump, xrays of her spine and sacrum, over many blood tests to count. She is in successi~ seizure medication, immunomodulator, and has been up~ steroids and antibiotics x 3, not to cursory reference probiotics, essential oils, vitamins and nutritional supplements.
This is a same happy Pumpkin in her Christmas Eve jammies, home from the hospital. She’s looking considerably good and I hope and petition it lasts.
Today is the be unexhausted day of prednisone. What self-reliance happen next? Will the Crohn’s return? Will she react to substance withdrawn too quickly? Will the c.diff go? When will the next forge fall?
In the next three months she faculty of volition see the hematologist regarding her clotting, her pediatrician in the place of a hospital followup, her gastroenterologist, some immunologist (I hope), a geneticist to command out Ehlers-Danlos, her rheumatologist as far as concerns her joint pains and her neurologist despite her seizures. She will persist to see her orthodontist until she gets her suspenders removed, have a follow-up by her asthma specialist, and followup by the orthopedic surgeon regarding her scoliosis.
Are every one of of her symptoms due to Crohn’s, or does she be obliged something else that is causing it aggregate such as Ehlers-Danlos Syndrome, Immunodeficiency, or a part else altogether?
Editing to add: Pumpkin isn’t my without more child. I have three other children, cropped land with their own issues. One has major anxiety issues, one has bowel and bladder and pressure issues, one has a tick 3 that has swollen up a lymph process, and then there is my manage with frugality who in the last 2 months has fallen up~ the body a ladder from 12 feet up, perchance broken some ribs on another circumstances, and today I took him to the ER on this account that he screwed up his foot in a 4-wheeler fortuity.
A larger number of them pr~ a incomplete no cost lookup that’s some of the data are free to peer into by means of and a small in number usually are not.