Here we are in Boston! It’s Day 2 in fact, and I am exhausted to speak the least. We have been at the hospital every one of day, and we gotta do it aggregate again tomorrow. Its not on the same level the fact that we have had for a like rea~n many appointments, just 2, and tomorrow the like thing. They are just spaced disclosed so much that we have to subsist there all day.
Today LJ had to beware Nephrology and GI. The true thing is that all of his labs looked main from a nephrology standpoint. They uttered he couldn’t have been again perfect from their point of see.
Now GI on the other part was something that I was additional concerned about. With everything going forward with my baby’s poor tummy, who knew which to expect. They want to deposit him back on the medicine he was due on, the flagyl, for a month this time, excepting they want to try it by with a probiotic. The probiotic would ~ your way for a few months though. The thing about that though is that when he was on the flagyl, he had t procure to be blood draws every few days, so that is not cool. According to the docs, in that place is also another option, which is vancomycin, yet that is much more expensive, and they slip on’t know if LJ can desire it because of his transplant. Either method, any of this has to subsist approved by renal before it direct actually happen. Another thing is, I regard to pay out of pocket because of probiotics, which are expensive, so they stand in want of to know if this is going to be in action because I have already tried more that didn’t, and wasted my currency. If all of this mum doesn’t work though, they are going to not to be present my poor baby to have a colonoscopy completed, and he is going to accept to be admitted to the hospital towards that one. Hopefully, we won’t extremity up making it to that dot. They did say that they would have existence willing to try imodium, which was my suggestion, because it worked for him in the past, if they can rule out the possibility of any infection. Of series, I already know that this whole started when he was on the amoxicillin, otherwise than that, I’m just his mother. So they took more more stool samples today, and more blood, and now more waiting. Waiting in favor of results, and waiting for the functionary plan.
On the schedule tomorrow, some other ultrasound of LJ’s kidney, and every appointment with urology to discuss. Prayers going up!
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