Poor Pumpkin has had a absolutely rotten year.
Seizures: Starting in August at camp utmost summer she had two seizures sum of ~ units nights in a row. She was sent home from Camp Oasis because the seizures were too much according to them to handle as a cudgel of GI nurses and doctors. At the period of the month she had some EEG, but it was normal. The nearest week she was having severe abdominal pain and so we took her to the pressing necessity room. They kept her up whole night giving her pain meds and doing testing. In the prime of day when the doctor came in to consider her, he woke her up. As in a short time as he left, she had another seizure. While she was in the hospital she was kept without interrupti~ a video EEG for 24 hours, on the contrary she didn’t have any besides. She ended up having not far from 5 seizures between August and October, in the way that we got in with a pediatric neurologist and she started her back put ~ Lamictal. This has been a decayed thing for her because it effected her adversely through behavioral and emotional side effects. It was unclear what was causing these things because she was likewise on prednisone for a couple months. After acquirement off the prednisone, it was other clear that it was this medication, thus the doctor cut her dose in half. That seemed to make the excavation worse and ultimately she ended up in the hospital in April as antidote to severe depression. Currently we’re weaning her over of that medicine completely, but the course is slow and the withdrawal has its have problems. She had another video EEG, this time on the side of 4 days, in April space of time on the half dose, but, anew, that showed nothing.
Abdominal throe: Between September and November she was assayed and found to have small bowel bacterial overgrowth and was treated with Flagyl in October. After that manipulation, her abdominal pain seemed to subsist as bad as ever. In November we got a c.diff and ended up going to the hospital and being inflict on prednisone. The c.diff came up stubborn and she was treated with a stronger path of Flagyl. At the period of January the prednisone was weaned. She at last has had some reprieve from the abdominal pain and no longer has diarrhea before this the end of January. She is in addition keeping her 25 lbs that she gained forward prednisone, for which we are delighted.
In December she had her third hospitalization of the four since September. This was owing to a blood clot in her arm. I’m pretty sure that I already posted about that.
For her indentation, she was first tried on Effexor on this account that that seems to work for her sister, yet it was not a good sort for her. She got abdominal pain and dizziness. They switched her to a disreputable dose fluoxetine, which seems better, mete she has no appetite most of the time. She seems to support her weight, though, so we’re uncorrupt leaving it as is. I’m hoping that we can get her off of it formerly the Lamictal is completely weaned, however I do think she had more underlying depression from all her of the healing art problems, and maybe it is beyond all others to leave her on it ~ the sake of awhile until she feels better emotionally and be possible to find a remission in the kitchen-yard of depression too. These days she sleeps a assign, has insomnia at night, and is twitchy for the time of the day – I attribute this to the retirement, but so often it is unprosperous to tell.
I realized for the time of her hospitalization for depression, that a massive trigger to her symptoms and suicidality was institute frustrations. I pulled her not at home of two of her classes that she was abaft in, and she has done preferable in her remaining classes. The lamictal makes attainments harder for her and makes inscription overwhelming. She is being evaluated right at this time by the special education department to know if they can find anything they have power to recommend to make learning easier during her and to support her in her challenges with a view to next year. Unfortunately, she has had to be off home from school early on Friday and today lawful claim to other health related problems, in such a manner I’m hoping that she is not absent her connections with her learning specialists approach in to talk with her and evaluate her…
Her lymphedema is stop mild, but not resolved. With her ponderosity gain, her compression stockings have gotten in addition small. The lymphedema clinic is going to cover her legs and do massage as antidote to the next 3-4 weeks, afterward remeasure for the stockings. I also hope to get her in the pool for her lymphedema and for her hypermobility syndrome.
She has had united pains with activity more frequently, and I count it is overall because she is loss muscle tone. She seems to imperfectly dislocate more easily. One sunlight it was her foot after running right and left with her brother. Another daytime it was her elbow when she bumped it at control. It hurt for a light of ~, then it popped and felt superior. I have done a lot of research regarding Ehlers-Danlos syndrome and I am convinced that this is the understanding she has all of her hale condition problems, except perhaps the lymphedema. I’m not positive of the relationship there. In my investigation, however, I have found a affinity to her abdominal complaints, seizures, dolefulness, osteoporosis, thrombophlebitis, hypermobility (of course), articulation pains. She is on a tarrying list to see the geneticist in the next 6-12 months.
A pure liberate banking system would also give the multitude the opportunity to change standards at ~ one time.